Day 11 for Roxy Pearl

I just copied my sisters post- SO sad!

Wahoo! The tube is out (atleast the tube going down her little throat); and I got to hold her for the first time last night since we took her to the ER in logan last monday! She now has a canula that they can support her with pressure and oxygen. Can I just tell you how awesome it felt to know that she is progressing and I can hold her. I can't wait to be able to nurse her!

Last night we had another hiccup from the medical world. Last night she was acting like she was starving; so I asked the nurse why they were not feeding her since they took the tube out. She told me that after the extubation (taking the tube out) they don't feed them for a few hours. I still didn't feel that great about it.I felt like she needed the strength to keep going. The docs even said that she would start feeding in the morning. So, this morning I get here and she was screaming (okay so when I say screaming...she is doing the motions and she is purple like she is sooo sooo mad but her vocal chords are still too far apart to make any sounds) and he is turing to her side, licking her lips, etc telling me that she is starving still. The resident (the doc under the doc doing her residency) came by and saw that she had not eaten all night. She wasn't very happy about; and pretty much apoligized for the oversight. I guess what happened after they explained it to me...cause I wasn't very happy- was that they must have thought she had the feeding tube into her stomach instead of her intestines; so they didn't want her to asperate anything into her lungs.Lesson learned by Mommy...go with your gut.

 So this morning, they started feeding her a small dose and it will take 7 or so hours for her to get back up to the feeding level she was yesterday before extubation. Poor little thing. She has had to put up with a lot of mistakes of medical staff.... I know...we are all human; but it is still hard to swallow when it is your little sweetie that suffers. I have learned that you totally have to advocate for your child. The docs and nurses come and go; but you usually can recognize distress etc more quicklly because they don't know what normal is for her. I am so long winded...I know, but I want to remember all these lessons I have learned.

She is still in the intensive car unit due to the pressure and other support she needs for her lungs. Now, she will breathe on her own with pressurized oxygen support until she is ready for the next step. It is so nice to see her without the tube down her little throat. Baby steps...

New update- Friday april 9th

 Roxy just got moved out of ICU and to her own room!The tubes are gone except for oxygen and she is breast feeding! I'm almost afraid to say she is improving cause I don't want to jinks it!

Made it home with a new Look and Feeling fresh!

I made it home Monday morning at  2:30 a.m. it was hard to leave but it always feels good to be home.  I need to get in the grove of things again, and its hard to when you didn't get much sleep. I had a fun trip all but the Roxy scare, a little update, Roxy is stable. No changes. 2 or so days ago they changed the breathing tube out because the first tube they used from the life flight was too large for the size of her little tubes; and they didn't want to injure her airway and make further complications with swelling etc. They have tried to ween her off the ventilator; but her co2 levels start to go up. Trying again she is doing good and breathing on her own. Becky got to hold her yesterday for the first time in 9 days so yesterday was a great day! Oh I made this for little Roxy it looked Roxyish right??

We did enjoy seeing everyone, the day I got there I just hung out with sister and mom and then that night Becky had her baby and then she was to put on a temple picture party, which I just got it all ready and we had a blast, I'm sad I didn't take pictures I did it with my best friend, and lots more fun people.

We got to watch Conner (my nephew)  at one of his wrestling matches which he just pinned both boys right a way.  My aunt and cousins come up from California and it was fun seeing them her boys love Erik so they had a good time.  We went and saw Becky and baby Roxy on Wednesday and then picked up Erik at the airport.  We went out and ate at Crown Burger one of our favorites in SL then went to the church museum, It has been updated since I had been there many years ago it was fun, Ethan got an ear ache and so it cut the looking around short but it was nice what we did see, Ethan was hoping for a little night at the museum action to happen I think. It was fun, Sadie loved the childrens part where she could take care of a doll in nursery it was cute.

Then on Saturday I went and got my hair cut and high lighted- big change, I cute about a foot off. It feels so good. A fresh new me for spring-

 Before

After

An update on Little Roxy

I Just copied this from my sisters blog- Its long but worth the read for all of us who will be having baby's!

Here we are at the Primary Childrens Medical Center with our little Roxy.  I took her in on Saturday to have the Doc check her and Oakley out. Oakley was in a ton of pain as well as a nasty cough. Oakley now has pneumonia and he sent her home with antibiotics for 2 ear infections and pneumonia. At this point Roxy had a congested nose and was starting to get a cough. She was still eating off and on, but she sounded horrible to me as her Mom. The Doctor however told me he couldn't hear anything I could hear and she sounded okay. He sent me home telling me that it was "good feeding". He thought that I was just nervous because of Oakley and her sickness. He also said that the probability of Roxy having something this young was not very high. He said that she was too young to allready have symptoms. NOT TRUE!!!! (The docs here say that the incubation period can be as little as 2-3 days in these infants!!!!!! Therefore she totally could have gotten this virus from our little Oakley. Sometimes, you just can't stop it. They told me that you just have to do the best you can to keep sick people away from the baby for as long as possible. They also said that a person who is sick with RSV (common cold symptoms in adults and older children) can infect someone for as long as 3 weeks!!! I have sure learned a lot about Viruses on top of what I had learned in my Health Ed classes for my Bachelors. These virus are so vulerant! So scary! My family thought I was parenoid before this experience with my little ones. Wait until they see me now. They can think I am crazy. They won't understand completely until they hold a baby of their own not breathing with grey gums and a blue face. HEART WRENCHING!!! Okay...so now that I have given my speech, I will now step off the soap box and continue on with the story.

Sunday morning, she was still progressivily getting worse with her cough and her breathing. She couldn't breath through her nose well and that is the main breathing route for infants. I went to bed Sunday night very nervous and afraid for her. I had decided to take her in the next morning if she had not improved. Monday morning, I wolk up and realized that she had not eaten all night! I leaned over quickly and saw that she was still breathing. However, a bit later I was trying to help her eat and she stopped breathing a few times while I was trying to nurse her and she wasn't very responsive. I thought I had lost her a few times that morning. Can I just say that I wouldn't wish that feeling on one of my worst enemies! It was unexplainable how that felt. After I had to "bring her back" a few times when she would quit breathing, I ran up the stairs and told Jaron to come down and we needed to go to the doc right away. I had him hold her for a minute while I grabbed some shoes ect and he came in and said, " this is really scary isn't it!?!" I said yes, and we were out the door.

On the way to Logan, Jaron and I both had the thought that maybe we should have taken her to the ER in P-town instead of the doc in Logan; but when we arrived and had her in the ER in Logan we were sure glad that we had taken her there. We got to the Doc's office and waited in the waiting room for a few minutes that seemed lke hours. We told the nurse again that this was an emergency and that we really needed help. She very rudley walked out. We really should have taken her strait to the ER; but she seemed to be responsive the entire way to the hospital. I think we were both in shock. We then took her into the doctors office and our Doc checked her O2 levels and decided to send us to the ER doc. A sweet nurse sped walked us and Roxy over to the ER and they had her on life support within the next little while. Her little body was just so tired that she was having a hard time getting enough oxygen on her own to keep going. They took a blood test and she came back positive for RSV. They then mentioned a few other possibilities and after talking with the Docs here at Primary Children's they decidedd to life flight her here. There are a whole lot more details that I could vent about, but I figure this is enough excitement for one post. She is still on a ventelator that breaths for her, 40-50% oxygen, as well as a feeding tube they put in last night so that she can now absorb Mommy Milk instead of just intervainously being fed.

This has been such a roller coaster. I don't know if I have ever had so much emotion hit in one day. I have dear friends that have talked about their personal situations with similar experiences, but I now feel a glimpse of what it might have felt like. It is just awful. I don't know if there is anything stronger then a mother's love besides of course the Atonement of Jesus Christ and the love He and our Father in Heaven has for us. As I have prayed to Father in Heaven through this whole thing, I just can't help but thank him for the Love he has for us and the love I have in my heart for my little ones. They are so special. This life is so bitter sweet. The bitter sometimes comes right along side the sweet.

Roxy Pearl

So I got to Preston and called my sister over and we hung out all day and I was telling her that I think she should pop her little girl out while I am here visiting and well that night we get a call at 4 a.m. and she had a sweet baby girl! Named Roxy Pearl who was only 5.12 pounds and 17.5 inches long, she came very quick they drove about 100 to Logan at 3:10 and she got there and had her within 1 hour! 

They are both doing really well! Baby came home on the second day. Its been so fun to be here! 

But I did tell her I was joking about poping the baby out, it was a month early!

Adoption

My dear cousins are trying to adopt!! They have one little girl Chambray that is a doll, who was adopted! 

I have a special place for anyone adopted because I was so blessed to be adopted to the best family ever! 

So if you think anyone that might be considering adoption, please pass there blog on to them, I would love a new cousin!!

Here is there new blog to pass along.

Ethan and his prize

Ethan and I went through some of my old things and we found one of my basketball trophy's and he was big time "WOWed" So I told him we would go outside and have a few races, and he could win my trophy.  So I worked him hard and gave a trophy for his hard work. It was so fun...

As soon as he can dribble a ball I am sure I will help him with his b-ball skills! Its was fun to show him that his mom played sports. Cant wait to see if he will like to play or take after his dad...

Rash boy

This happend a few weeks ago and we are still trying to figure out what it was... But doesn't he look so sad!

Sadie is a big girl now!

The big fat cat that lives upstairs is what got this girl to go.

She has made it through three weeks and even on sudays! Last night she came in and woke me up to do the job, so I can truely say she is potty trained!! thank goodness!

I couldn't be happier, she has it down so good now she will go do it herself and Ethan will help if he gets a treat out of it.

I just wanted to add some pictures of when I did her hair with moose to try for some curl~ 

S is for Skating Sadie

This week's preschool field trip:

Stole this from my friend and this is what she said:

"Super-Cute Skatin'-Sadie. She wins the prize of the day as far as I'm concerned. She put those little skates on for the first time in her life and was ready to roll. No fear, natural balance, and an adorable smile."

 I couldn't agree more! It was so fun she kept letting go of me and wanting to do it all by her self.  But Ethan on the other hand, just wanted to watch! I was o.k. with that I think I would have needed a few more hands if he tried. But next time he said he wants to, can't wait!